I don't know exactly how that nick name came about, but for the last several years Isabella has been my "Bella Bear." I guess, kind of like my "beautiful teddy bear," she is so beautiful and cuddly as a teddy bear.
Today I took Isabella to therapy, because of Isabella's new seizure medicine she has been going through very tired moments. At her therapy, she was quite compliant (not always normal) and extremely cuddly. She kept trying to hug the therapist and at one moment decided to sit on the ground. The therapist followed her lead and sat on the ground to do therapy on the floor. Isabella liked this and decided to collapse on the therapist lap and suck her thumb. Not real productive but it was cute. In the evenings she likes to get her soft blanket and take it to Sierra, signifying she would like to sit and cuddle. Therefor she is our cuddly teddy bear.
Bella Bear, has had such ups and downs with her seizures. We would be good for a while then she would have a seizure here and there and eventually they would increase her meds. She finally maxed out on the dosage and started having seizures. We had to change medicine. The first dosage was too low and she had a seizure, so they increased it and the seizures stopped. Her new medicine comes with side effects that we are not happy with. Isabella has frequent moments where she is quite tired and not "all there," her eyes have occasions where they are very sensitive to light, and she has angry outbursts. I asked our neurologist if we should cut back on the dosage and they agreed. Isabella immediately had another seizure. I asked if we could change medicine and they suggested another medicine that we will need to monitor her with a blood draw and it could have the same side effects. Yikes. Because Isabella is nonverbal she can't understand why we draw her blood and it is incredibly traumatic on us both. There is no easy answer and as the parent it is "up to me" what we do. Double Yikes!!! Too many decisions.
I hate seizures. Why they happen, I don't know. I wish we could do something to stop them. Until God gives the medical society a way to end them we can only do, what we can do, which is pray. Isabella is a joy and we are grateful for our "Bella Bear."
God Bless and have a great day.
Alicia
Today I took Isabella to therapy, because of Isabella's new seizure medicine she has been going through very tired moments. At her therapy, she was quite compliant (not always normal) and extremely cuddly. She kept trying to hug the therapist and at one moment decided to sit on the ground. The therapist followed her lead and sat on the ground to do therapy on the floor. Isabella liked this and decided to collapse on the therapist lap and suck her thumb. Not real productive but it was cute. In the evenings she likes to get her soft blanket and take it to Sierra, signifying she would like to sit and cuddle. Therefor she is our cuddly teddy bear.
Bella Bear, has had such ups and downs with her seizures. We would be good for a while then she would have a seizure here and there and eventually they would increase her meds. She finally maxed out on the dosage and started having seizures. We had to change medicine. The first dosage was too low and she had a seizure, so they increased it and the seizures stopped. Her new medicine comes with side effects that we are not happy with. Isabella has frequent moments where she is quite tired and not "all there," her eyes have occasions where they are very sensitive to light, and she has angry outbursts. I asked our neurologist if we should cut back on the dosage and they agreed. Isabella immediately had another seizure. I asked if we could change medicine and they suggested another medicine that we will need to monitor her with a blood draw and it could have the same side effects. Yikes. Because Isabella is nonverbal she can't understand why we draw her blood and it is incredibly traumatic on us both. There is no easy answer and as the parent it is "up to me" what we do. Double Yikes!!! Too many decisions.
I hate seizures. Why they happen, I don't know. I wish we could do something to stop them. Until God gives the medical society a way to end them we can only do, what we can do, which is pray. Isabella is a joy and we are grateful for our "Bella Bear."
God Bless and have a great day.
Alicia
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| On Sunday's Isabella and I hang out at the house until Sunday school is done. This Sunday the cat and dog kept her company while I was doing dishes. |
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| aren't they sweet. |
Love you Bella Bear
ReplyDeleteLatisha :)